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Ben's Friends Sites and Social Media

Official Ben's Friends Website

List of Ben's Friends Patient Communities

Blogs

Know your family history: Unmasking Von Willebrand Disease’s Pervasive Impact
Executive Summary Von Willebrand Disease (VWD) is a lifelong bleeding disorder that poses both physical and social challenges. For instance, The post Know your family history: Unmasking Von Willebrand Disease’s Pervasive Impact appeared first on News From Ben's Friends.
Complex Regional Pain Syndrome: A Burdensome Journey of Relentless Pain
For some people, taking a shower, feeling the wind on their skin, or their clothes brushing their legs can bring The post Complex Regional Pain Syndrome: A Burdensome Journey of Relentless Pain appeared first on News From Ben's Friends.
The Family’s Burden: Shedding Light on the Challenges of hATTR Amyloidosis
Hereditary Transthyretin (hATTR) Amyloidosis is an inherited condition caused by mutations in the transthyretin gene, leading to the accumulation of The post The Family’s Burden: Shedding Light on the Challenges of hATTR Amyloidosis appeared first on News From Ben's Friends.
The Ripple Effect: How ADEM Impacts Patients and their Loved Ones
Acute Disseminated Encephalomyelitis (ADEM) is a rare disorder marked by severe swelling in the brain and spinal cord. It usually The post The Ripple Effect: How ADEM Impacts Patients and their Loved Ones appeared first on News From Ben's Friends.
Butterfly Skin Unmasked: The Challenge of Living with Epidermolysis Bullosa
Recognized as both “butterfly skin” and “the worst disease you’ve never heard of,” epidermolysis bullosa (EB) casts a profound impact The post Butterfly Skin Unmasked: The Challenge of Living with Epidermolysis Bullosa appeared first on News From Ben's Friends.

Testimonials

Ben created this wonderful site. His Twitter feed is filled with many stories of hope over great challenges.

Sharyn

Ben’s Friends continues to expand this gift of love and support by creating more communities for folks sharing different great health challenges. Ben’s growing patient support sites continue to provide support with its members while new members share the challenges and share the joys. Thanks to Ben, Shalon and all the others who manage this site. It is a gift that keeps on giving.

--- Sharyn

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Your website then was my biggest support.

Pat

We met back in 2006, in Austin at St.Davids. I and my daughter, Britanny, who was then 16 years old were new to the site. Your website then was my biggest support and we came to know that so many others are struggling through very similar issues. Today Brittany is 21 and married almost a year ago. Britanny now lives here in Austin and had gone for a year in San Diego. After her gamma knife operation, we had to wait the two long years. I am so proud of YOU!!! You are such a wonderful example of turning the hurts and pains of this life into positive! May you be ever so BLESSED!!!

--- Pat

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